Your gift will help us support Dravet children and their families through these important activities:
By supporting a Patient Information Specialist who will research and share the latest information on Dravet Spectrum disorder and provide parents and doctors with the latest news, medical alerts, and research findings on Dravet
By helping parents obtain the critical support they need, such as medical funding, special needs equipment, insurance reimbursement, public school assistance, and personal counseling
Because many Dravet spectrum disorders do not respond to any existing epilepsy treatment, finding an effective treatment and cure requires research specifically focused on Dravet. All Dravet.org-funded research studies are peer-reviewed to determine which ones are most worthy of being supported.
By bringing the world’s leading experts in Dravet together for a day-long meeting to discuss the current status of research and share recent findings, and to disseminate the information to Dravet.org members
By supporting the world’s largest biennial gathering of Dravet syndrome families, where people gather together to share support, friendship and hope and to learn about the latest developments in research from the world’s leading medical experts
To make sure your gift is directed to a specific program above, please identify the program of your choice on your credit card donation or check, and we’ll guarantee your support is given exactly where you want it to go!
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