Testimonials

“Because of my affiliation with Dravet.org, I am better able to help children affected by Dravet syndrome, and vice versa. I am able to learn many things from the families about the condition and its impact on them.”

- Charlotte Dravet, MD


“We have worked with thousands of physicians, nurses, and patient advocates over the past 90 years. But I cannot recall any one person that exemplifies the advocacy ideology, in the service of others, better than the Dravet.org president, Laura Cossolotto.”

- President, Ed Safdie, Caligor Rx

“Dravet.org’s commitment to advocacy and support for families battling Dravet syndrome is inspiring. We are honored to collaborate with them to empower people with epilepsy play a more active and informed role in their medical care. The quality of services offered by Dravet.org should be a benchmark for the epilepsy community.”

- Founders, Robert & Lisa Moss, SeizureTracker.com

“Dravet.org International Conference is a refreshing gathering of patients, families, physicians, and researchers all pulling together to push the envelope and advance our state of knowledge and care for individuals with Dravet syndrome. They have been well organized, highly professional, and fun!”

- Phillip L. Pearl, M.D.
Division Chief, Child Neurology
Children's National Medical Center

“Our son Derek is the sweetest child, he has never had a temper tantrum and loves to smile and give hugs, but he struggles daily from Dravet syndrome. We hope that the research study we created in his honor though Dravet.org will lead to more effective treatments and a cure. We are fortunate our family and friends have so generated this Dravet.org research.”

-Rudawsky Research Fund, Staci & Zvi Rudawsky

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