A recent article in the journal Neurosciences provides a useful review of the current state of the art in the treatment of Dravet Syndrome. The article discusses the underlying genetic causes and common symptoms of the Dravet Spectrum Dis... Learn More
A group of researchers from Australia and New Zealand, including Dr. Ingrid Scheffer, report that a rare form of myoclonic epilepsy called eyelid myoclonia with absences (EMA) shares many of the same observable characteristics (phenotypes) as gene... Learn More
A team of researchers in China report that they have found the ketogenic diet (KD) to be a safe and effective way to treat refractory childhood epilepsy. The study, which followed the use of KD with over 300 children between 2004 and 2011, found t... Learn More
Researchers in Japan seeking to understand whether SCN1B mutations play a role in causing Dravet Syndrome recently reported that they believe it does. They reported that they found the mutation in a patient with Dravet Syndrome who does not have S... Learn More
Dravet Syndrome is now on the Social Security Administration's Compassionate Allowances list! That means applicants with a family member with Dravet Syndrome automatically have a recognizable rare disease that will streamline the process of applyi... Learn More
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