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Jennie Stormes of Hope Township, Pennsylvania, says that until she was able to get stiripentol for her son Jackson, she had never really met him. The story of Stormes' persistence, and the challenges they still face, was featured an article in yesterday's issue of The (Lehigh Valley) Express-Times.
Dravet.org President Laura Cossolotto was also interviewed for the article. She recounted her family's decade-long odyssey toward an accurate diagnosis for her daughter Michaela and the difference that stiripentol has made in managing Michaela's seizures. (Phillip Molnar, "Hope Township boy with severe epilepsy experiences change on new medication," The Express-Times, Monday, December 26, 2011)
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