As the parents of a child newly diagnosed with a Dravet Spectrum Disorder, one of the first things you probably wondered is: “how are we going to manage all of this?” This guide is designed to help you do just that. You’ll get the answers to questions that you’ve no doubt already started asking -- and to the questions you haven’t even though of yet. You’ll get:

• what Dravet Spectrum Disorders are -- and aren’t
• answers to the questions you are asking right now
• tips for getting plugged into the network of available resources and educating yourself
• suggestions for how to talk to your doctors, caregivers,and teachers about Dravet Syndrome Disorders
• tips and techniques for taking care of yourself so that you're able to care for your child better

This guide was written by parents who have been right where you are now. Over the years, they’ve heard every new parent ask the same questions that they did, too. So they asked themselves: “What do I wish that someone had told me when my child was first diagnosed?” and pooled their best advice just for you. They wrote this guide because the more informed you are, the better decisions you can make for your child, and the happier and healthier his or her life will be because of you.

And because you and your child are not alone!

Living with Dravet Spectrum Disorder: A guide for Newly Diagnosed Families