About Dravet

Thanks To Piper's Pals

This page made possible thanks to the generous donations from Piper's Pals in honor of Piper Wood.

If you think your child, or someone in your family, has a Dravet Spectrum Disorder, you’ve come to the right place. 

We will give you the information and support you need to care for your child, empower you to take an active role in their treatment, and become a powerful advocate on their behalf.

We are your one-stop resource for comprehensive education on the entire spectrum of SCN1A related epilepsies, Febrile Seizures, GEFS+, ICE-GTC, SIMFE, and Dravet syndrome.  Here you will find the latest information on treatment options, updated medical research, news alerts, and hope.

The information contained in or made available through the Dravet.org website is not intended
 to replace the services of a trained health professional or to be a substitute for medical advice of physicians. The user should consult a physician in all matters relating to his or her health, and particularly in respect to any symptoms that may require diagnosis or medical attention

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