About Dravet

We are a powerful global partnership of parents and medical experts united in the goal of improving treatments for children with Dravet (Syndrome), Spectrum Disorders, while empowering families to cope with the daily challenges of this disorder. Learn More

About Seizure Disorders

Have Your Questions Answered By Our Medical Experts

Patients & Families

Connect with Other Families Make Friends & Get Support

Join Our Patient Registry! Make sure your child is counted for research

NYU Epilepsy Center Partners with Dravet.org on SUDEP in Dravet Syndrome Children Study

New York University (NYU) Epilepsy Center is partnering with Dravet.org on a new study to determine whether the sudden death of some children with Dravet syndrome is due to epilepsy or other causes. The study will collect information worldwide from parents of children with Dravet syndrome who have died suddenly. Find out how you can participate.

Stories of Hope

Each of our children has a story. View our Stories and Be Inspired!

News & Events View All

Get Monthly Updates on the Latest Research & Medical Findings

Copyright © Dravet.org 2012
All rights reserved
Disclaimer | Privacy Policy

Dravet.org
PO Box 66599
Baltimore, MD 21239-6599 USA
866-828-1843
LinkedIn
E-mail Signup